Sister was admitted to The Children's Hospital last
Wednesday after having several absence seizures. She typically has complex
partial seizures, so I almost didn't recognize them. They started when we were
at PT that morning and she became unresponsive (but still breathing) on our way
home. I turned around and took her straight to the ER. Her neurologist decided
to admit her so they could perform a 24-hour EEG to see if anything had
changed. Sister slept most of the first day and surprisingly slept all night
(7:30p-5:30a). She woke up mad, ready to play and wanted to take the head wrap
off! The EEG showed that there were no changes from her previous ones (this was
her 4th), and her team of doctors decided that she was ok to go home. We need
to follow up with her pediatrician this week and her neurologist next week.
I try very hard to keep Brother's daily routine the same
when Sister is not doing well, but sometimes it is just not possible. Since Sister
was admitted to the hospital while Brother was still in school, Hubby picked
him up and brought him over to my friend's house to play with her kids (she is
an amazing friend!) We decided it would be best for Brother stay at my parent's
house that night and skip school the next day (again, not something I would
normally like to do) and have a fun day with my mom (I've already said how
amazing she is, but I'll say it again!)Brother had so much fun, but he is a
smart kid and knew something was up. I didn't want him to see Sister with her
head wrapped and he was upset that he couldn't check in on her before going to
my parent's for the night. It broke my heart to see him crying, but even I had
a hard time seeing her that way. I convinced him that she would be ok, and that
he could call her later and tell her good night. I hope they always love each
other this much.
So, to say that things are "familiar" again would
mean that we still don't know how often or how severe Sister's seizures will
be. For someone who hates surprises and would plan every minute of her life if
she could, this has been a big adjustment for me. In a way, I am grateful for
the gift of the unknown because it means that anything is possible. However, I
also have no idea how to prepare myself and my family for what may happen next.
"Trust in the Lord with all your heart, And lean not on your own
understanding; In all your ways acknowledge Him, And He shall direct your
paths" (Proverbs 3:5,6)
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